In a case that is chillingly similar to the Justina Pelletier case, two preteen sisters have been seized from their parents’ custody by CPS and Phoenix Children’s Hospital. In just five months in state custody, the oldest has lost 25 percent of her weight. The sisters are being used without their parents’ consent for genetic research. While their mother fears for her daughters’ very lives, she has been court ordered not to talk and to remove all discussion of the case from social media and the internet.
Kayla, 12, and Hannah Diegel, 10, both have been diagnosed with a rare form of genetic mitochondrial disorder, called congenital disorder of glycosylation, according to Health Impact News. Both also have gastroparesis, which is paralysis of the stomach muscles, and dismotility of the colon. They have being fed through feeding tubes for some time, because their systems couldn’t process solid food adequately. With the feeding tubes, the sisters were able to gain weight and thrive.
In April of 2014, CPS of Arizona, under the direction of the Phoenix Children’s Hospital, took the sisters away from their parents’ custody. Since that time, the doctors have removed the feeding tubes, which has resulted in Kayla losing 25 percent of her body weight. She now has less than three percent body fat. Hannah has lost 17 percent of her weight under the care of the doctors in Phoenix.
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